Vermont Couple Shares Strategies on Managing Neurodegenerative Disease

Vermont Couple Shares Strategies on Managing Neurodegenerative Disease
Like many couples, Joe and Linda Lacroix of Milton, Vermont, spent much of their lives working, raising families, maintaining their home, and planning for the future. Unlike most, however, there was always a dark cloud looming on their horizon — a gene for Huntington’s disease carried by Joe’s mother. After Joe, 67, was diagnosed in 2002 at the age of 50, the couple’s life was turned upside down — physically, emotionally, and financially. They both had to retire early and simplify their lifestyle to cut expenses. They kept only one car. They switched to cheaper dog food. At the age of 68, Linda was forced to return to work to make ends meet. Their son and daughter-in-law moved in with them, something unlikely to have happened had Joe not been sick. In the ensuing 17 years, they’ve developed new routines to adjust to their changed circumstances. Here are some things that have helped Joe and Linda weather the ups and downs of living with Huntington’s — strategies that could easily apply to those struggling with amyotrophic lateral sclerosis
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